A few months ago, a few MYC & JAG Youth Council members ran into the Youth Center asking if we could hold our next Find Yourself Friday Youth Event for a 10 year old Milford girl that had a rare disease, named Kayley. Kayley was diagnosed with a condition known as Mid Aortic Syndrome just after her 10th birthday. Only 200 cases of MAS have been reported throughout the world. Out of those 200 cases only 60 have been successful. Kayley is number 201. As stated by her doctors at Children’s Hospital in Boston, Kayley is one of the most complicated cases they have ever seen.
After learning more about what was going on, we invited Kayley to attend our next JAG Youth Council meeting and asked her mom if it would be okay to hold our next Youth Event for her. Both agreed and soon after Kayley became an MYC & JAG Youth Council member. In just over one month, we got to really see how Kayley is such a kind and sweet young girl! We hope to help the family raise money for her surgery expenses during this very tough time. Kayley went into surgery on December 5th and was in the hospital recovering for two weeks. Surgery went very well and she is now home getting better!
Our next Find Yourself Friday event will be held on Friday, January 24th and a portion of the proceeds will be going towards her gofundme.com/KayleysHope collection. The event will be held from 6:30- 9 PM at the Milford Youth Center and will include music, dancing, snacks, a jumpy, a movie, raffle prizes, games and bracelets to sell/make for Kayley! If you would like to volunteer at this event, please email Jen Ward.